Eloy Arenas on the cover of the 5P syndrome foundation calendarThe new Solidarity Calendar of the 5P Syndrome Foundation He has had the collaboration of famous comedians who have rendered their image selflessly.
Millán Salcedo and Josema Yuste star in the months of April and September of the 2013 calendar of the foundation. There are also Diego Arjona, the Gomaespuma Duo, Javivi, Meritxell Huertas, and many others that I don't mention due to lack of space. All of them have shared laughs, games and fun moments with children affected by 5P syndrome. Humor geniuses have been photographed in theaters where they had their functions (the Capitol Club, the Muñoz Seca, ...) or in symbolic spaces in Madrid such as Quinta de los Molinos. The funds raised from the sale of the calendars will be used for the research project that is being developed at the Miguel Hernández University of Elche (Alicante).
It is also intended to co-finance the new support service for families, "respite" to care for those affected and train relatives
5p Syndrome, also called Cri du Chat Syndrome, is the loss of a part of the short arm of chromosome number five. It occurs more frequently among girls than boys. At present, the causes of the disease are not yet known with certainty. In general terms, the disorder occurs in 85% of cases sporadically and only 15% or 20% suffer from hereditary. Thus, it is considered a rare disease.
Javivi and Diego Arjona with Sofia in the Parque Quinta de los Molinos'Laugh and don't look with who' is the title of the calendar, and you know why? 'People suffering from this disease are characterized by their marked sense of humor and their affectionate character'
They are also afraid of certain objects and noises, are shy, and (sometimes) present challenging behaviors. In addition, they have very significant common physical characteristics: low birth weight and slow growth, small head, weak muscle tone, mental retardation, separate eyes and low and malformed ears.
It is a syndrome that affects one in 50,000 births (in Spain there are approximately 500 cases), hence the importance of actions aimed at increasing social awareness and research.
The 5P Syndrome Foundation was born as a link between a few affected families, who seek to improve the daily lives of their families. They have been fighting for more than five years to give visibility to the collective, and raise funds to carry out various projects.
The thematic calendar of the year 2013 is the sixth one that is published, and if you are interested in it, you can contact the 5P Syndrome Foundation through the email Fundació[email protected].
A solidarity action full of humor, tenderness and a good dose of confidence in the future which will undoubtedly bring new aid to continue with the lines of research and improvement programs in the lives of those affected and family members.
Images | Mateo Liébana for the 5P Syndrome Foundation More information | 5P Syndrome Foundation in Peques and More | Families and children with Rare Diseases wish to make themselves visible so as not to be alone, 'Children are close to integration': campaign for the normalization of rare diseases in schools, DEBRA is an association that works to improve the quality of life of children affected by "butterfly skin"
